Recommended Readings

Links

Native American Health Issues, Lessons Learned from Community-based Interventions, and Overview of Native Cancer Projects

Linda Burhansstipanov, M.S.P.H., Dr.P.H., C.H.E.S.

  1. Burhansstipnov L. Urban Native American Health Issues. Cancer 2000; 888:987-93.
  2. Burhansstipanov L, Dignan MB, Bad Wound D, Tenney M, Vigil G. Native American Recruitment into Breast Cancer Screening: The NAWWA Project. J Cancer Educ 2000; 15:29-33.
  3. Burhansstipanov L, Hampton JW, Tenney MT. American Indian and Alaska Native Cancer Data Issues. American Indian Culture and Research Journal 199:23(3): 217-241.
  4. Burhansstipanov L. Lessons Learned from Native American Cancer Prevention, Control and Supportive Care Projects. Asian American and Pacific Islander Journal of Health: Summer-Autumn 1998; 6(2): 91-99.
  5. Burhansstipanov L, Bad Wound D, Capelouto N, Goldfarb F, Harjo L, Hatathlie L, Vigil G, and White M. Culturally Relevant "Navigator" Patient Support: The Native Sisters. Cancer Practice. May/June 1998; 6(3): 91-194.
  6. Dignan MB, Michielutte R, Sharp PC, Bahnson J, Young L, Beal P. The Role of Focus Groups in Health Education for Cervical Cancer among Minority Women. J Community Health 1990;15(6):369-375.
  7. Dignan M, Michielutte R, Sharp P, Young L, Daniels L. Use of Process Evaluation to Guide Forsyth County's Project to Prevent Cervical Cancer. Public Health Rep 1991;106(1):73-77
  8. Frost F., V. Taylor, E. Fires, Racial misclassification of Native Americans in a surveillance, epidemiology and end results cancer registry. Journal of the National Cancer Institute: 1992: 84:12:957-962.
  9. Michalek AM, Mahoney MC, Tome D, Tenney M, Burhansstipanov L. Tribal-based Cancer Control Activities: Services and Perceptions. Cancer Supplement: 78: 7: October 1996.
  10. Nutting PA, BN Calonge, DC Iverson, LA Green. The danger of applying uniform clinical policies across populations: the case of breast cancer in American Indians. American Journal of Public Health. 1994. 10:84(10):1631-6.

The Impacts of Racism on Health

Camara P. Jones, M.D., M.P.H., Ph.D.

  1. Cooper R, David R. The biological concept of race and its application to public health and epidemiology. J Health Politics Policy Law 1986; 11(1):97-116.
  2. Jones CP. Levels of Racism: Theoretical Framework and A Gardener's Tale. Am J Public Health 2000;90:1212-1215.
  3. Jones CP, LaVeist TA, Lillie-Blanton M. "Race" in the epidemiologic literature: An examination of the American Journal of Epidemiology, 1921-1990. Am J Epidemiol 1991; 134(10):1079-1084.
  4. Jones CP. Living beyond our "means": New methods for comparing distributions. Am J Epidemiol 1997; 146(12):1056-1066.
  5. Krieger N. Embodying inequality: A review of concepts, measures, and methods for studying health consequences of discrimination. Int J Health Services 1999; 29(2):295-352.
  6. Williams DR. Race and health: Basic questions, emerging directions. Ann Epidemiol 1997; 7(5):322-333.

Race and Ethnicity: Categories and the Influence of SES on Health

Olivia Carter-Pokras, M.H.S., Ph.D.

  1. Adler NE, Marmot M, McEwen BS, Stewart J (eds) Socioeconomic Status and Health in Industrial Nations, Annals of the New York Academy of Sciences, vol 896; New York, New York (1999).
  2. Berkman LF, Kawachi I (eds) Social Epidemiology New York; Oxford University Press (2000); 36-75.
  3. Health Services Research - Selected Papers from the Association for Health Services Research Annual Meeting, vol 34, num 1, Part II (1999).
  4. Kawachi I, Kennedy BP, Wilkinson RG (eds) The Society and Population Health Reader Volume I: Income Inequality and Health; New Press, New York (1999).
  5. Krieger N. Embodying Inequality: A Review of Concepts, Measures, and Methods for Studying Health Consequences of Discrimination. International Journal of Health Services, Volume 29, Number 2, (1999); 295-352.
  6. Krieger N, Williams DR, Moss NE. Measuring social class in U.S. public health research: concepts, methodologies, and guidelines. Annual Review Public Health 18 (1997); 341-78.
  7. Liberatos P, Link BG, Kelsey JL. The measurement of social class in epidemiology. Epidemiology Review 10 (1988);87-121.
  8. Marmot M, Wilkinson RG (eds) Social Determinants of Health New York; Oxford University Press (1999).
  9. Miringoff M, Miringoff ML (eds) The Social Health of the Nation New York; Oxford University Press (1999).
  10. Office of Management and Budget Bulletin No. 00-02. Guidance on Aggregation and Allocation of Data on Race for Use in Civil Rights Monitoring and Enforcement (March 9, 2000).
  11. Office of Management and Budget. Standards for Maintaining, Collecting, and Presenting, Federal Data on Race and Ethnicity. Federal Register (October 30, 1997); 62(210):58755-58790.
  12. Use of race and ethnicity in public health surveillance. Summary of CDC-ATSDR workshop. MMWR Recommendations and Reports (1993); 42:1-17.
  13. Williams D. Race/Ethnicity and Socioeconomic Status: Measurement and Methodological Issues. International Journal of Health Services vol 26, num 3, 483-505 (1996).

Sampling Racial and Ethnic Minorities

William Kalsbeek, Ph.D.

  1. Lepkowski, James M. (1991). Sampling the difficult-to-sample. Journal of Nutrition. 121(3):416-23,
  2. Watters, John K. and Biernacki, Patrick. (1989). Targeted sampling: options for the study of hidden populations. In Social Problems 36(4), 416-430.
  3. Frank, Ove and Snijders, Tom (1994). Estimating the size of hidden populations using snowball sampling. J. Official Statist. 10, 53-67.
  4. Kalsbeek, William D., Sharon Y. Cornell, and Patricia S. Tennis. (1987) On Developing a National Sample of Women Early in Pregnancy, ASA Pro Srvy, pp. 720-725.
  5. Kalsbeek, William D. (1988) Design strategies for nonsedentary populations, ASA Pro Srvy, pp.28-37.
  6. Thompson, Steven K. (1998). Adaptive sampling in graphs. In ASA Pro Srvy, 13-22.
  7. Massey, James T., Judkins, David and Waksberg, Joseph (1993). Collecting health data on minority populations in a national survey (Disc: p85-87). In ASAProSrvy, 75-84.
  8. Bailey, Jeffrey T. and Kott, Phillip S. (1997). An application of multiple list frame sampling for multi-purpose surveys. In ASA Pro Srvy, 496-500.
  9. Frey WH. Farley R. Latino, Asian, and black segregation in U.S. metropolitan areas: are multiethnic metros different?. Demography Feb 1996;33(1):35-50.

Minority Health Research: Application of Epidemiologic Methods

Elena Yu, Ph.D., M.P.H.

  1. Amaro H, Jenkins W, Kunitz S, Levy J, Mixon M, and Yu E. Panel I: Epidemiology of Minority Health. Health Psychology 1995;14:592-600.
  2. Kim K, Yu ESH, Chen EH, Kim J, and Brintall RA. Colorectal Cancer Screening. Cancer Practice 1998;6:167-175.
  3. Lee MS, Crittenden KS, and Yu E. Social Support and Depression among Elderly Korean Immigrants in the United States. International Journal of Aging and Human Development 1996;42:313-327.
  4. Yu ESH. An overview of U.S. Health Data for Asian Americans and Pacific Islanders: Sources, Limitations, and Potential Solutions. Asian American and Pacific Islander Journal of Health 1996;4:68-71.
  5. Yu ESH, Liu WT. US National Health Data on Asian Americans and Pacific Islanders: A Research Agenda for the 1990s. American Journal of Public Health 1992;82:1645-1652.

Qualitative Approaches to Questionnaire Design: Methods and Applications

Richard Warnecke, Ph.D.

  1. Johnson TP, Jobe JB, O'Rourke D, Sudman S, Warnecke R, Chavez N, Chapa-Resendez, G, Golden P. Dimensions of self identification among multiracial and multiethnic respondents in survey interviews Evaluation Review 1997; 21:671-687.
  2. Johnson TP, Parsons JA, Warnecke RB, Kaluzny AD. Dimensions of mail questionnaires and response quality Sociological Focus1993; 26:271-274.
  3. Parsons JA, Johnson TP, Warnecke RB, Kaluzny A. The effect of interviewer characteristics on gatekeeper resistance in surveys of elite populations Evaluation Review 1993; 17:131-143.
  4. Sudman S, Warnecke R, Johnson T, O’Rourke D, Davis A, Jobe J. Understanding the cognitive processes used by women reporting cancer prevention examinations and tests Journal of Official Statistics 1997; 13:305-315.
  5. Warnecke RB, Johnson TP, Chavez N, Sudman S, O'Rourke DP, Lacey L, Horm J. Improving question wording in surveys of culturally diverse populations Annals of Epidemiology 1997; 7:334-342.
  6. Warnecke RB, Sudman S, Johnson TP, O'Rourke D, Davis AM, Jobe JB. Cognitive aspects of recalling and reporting health-related events: Pap smears, clinical breast exams, and mammograms American Journal of Epidemiology 1997; 13(3):305-315.

Issues and Challenges in Reducing Health Disparities among Hispanics/Latinos in the U.S.

Aida L. Giachello, Ph.D.

  1. Giachello, A. Health Outcomes Research on Hispanics/Latinos. Journal of Medical Systems 1996: 20(5):235-253.
  2. Lipton, R., and others. Factors Affecting Diabetes Treatment and Patient Education among Latinos: Results of a Preliminary Study in Chicago. Journal of Medical Systems 1996; 20(5):267-276
  3. McDermott, M., and others. Practice Variations in Treating Urban Minority Asthmatics in Chicago. Journal of Medical Systems 1996; 20(5):255-266.
  4. Lipton, R., and others. Attitudes and issues in treating Latino patients with type 2 diabetes: views of healthcare providers. The Diabetes Educator 1998; 24(1):67-71.

Assumptions in Community Based Research and Assessment

Robert E. Fullilove, III, Ed.D.

  1. Fullilove RE and Fullilove MT. Conducting research in ethnic minority communities: Considerations and challenges. In Drug Abuse Prevention with Multiethnic Youth . Botvin GJ, Schinke S and Orlandi MA [eds]. 1995. Sage Publications, Thousand Oaks, CA.
  2. Fullilove MT. Psychiatric implications of displacement: contributions from the psychology of place. American Journal of Psychiatry 1996;153:1516-1523.
  3. Fullilove RE, Fullilove MT, Northridge ME, et al. Risk factors for excess mortality in Harlem: Findings from the Harlem Household Survey. American Journal of Preventive Medicine 1999;16(3S):22-28.
  4. Fullilove MT, Green L, Fullilove RE. Builing momentum: An ethnographic study of inner-city redevelopment. American Journal of Public Health 1999; 89:840-844.

The Detroit Community-Academic Urban Research Center: Principles, Rationale, Challenges and Lessons Learned Through a Community-Based Participatory Research Partnership

Barbara A. Israel, Dr.P.H.

  1. Baker EA, Israel BA, Hugentobler MK, Schurman SJ. Use of local theory as a means to evaluate organization change programs. Manuscript in progress.
  2. Israel BA, Schulz AJ, Parker EA, Becker AB. Review of community-based research: Assessing partnership approaches to improve public health. Annual Review of Public Health 1998; 19:173-202.
  3. Israel BA, Baker EA, Goldenhar LM, Heaney CA, Schurman SJ. Occupational stress, safety and health: Conceptual framework and principles for effective prevention interventions. Journal of Occupational Health Psychology 1996; 1(3):261-286.
  4. Schurman SJ, Israel BA. 1995. Redesigning work systems to reduce stress: A participatory action research approach to creating change. In L. Murphy, J. Hurrell, S. Sauter and G. Keita (eds.) Job Stress Interventions, Washington DC: American Psychological Association.
  5. Israel BA, Schurman SJ, House JS. Action research on occupational stress: Involving workers as researchers. International Journal of Health Services 1989; 19:135-155.

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Updated 6/9/2000, 6/12/2000, 8/25/2000 minority_health@unc.edu